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06.02.08, 19:58 PM General Topics
17 replies
anyone have experience with trisomy 18? my good friend's baby (fetus?) was just diagnosed. i don't know what to say to her. ihaven't spoken to her, only heard through her mom (family friend). i'm so sad for her. [ Reply | Watch | Flag ]
General Topics 06.02.08, 07:58 PM Flag
 

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i don't. how sad for your friend... [ Reply | More
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General Topics 06.02.08, 07:59 PM Flag
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yes. i can't imagine... [ Reply | More
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General Topics 06.02.08, 08:05 PM Flag
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Me. My 2nd pg ended in mc at 8 wks. Genetic testing showed Trisomy 18. It rarely survives to birth. if it does, I don;t think the baby survives very long. Severe issues. Sorry for your friend. How many wks is she? [ Reply | More
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General Topics 06.02.08, 08:01 PM Flag
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22. maybe 23 already. i don't know what they plan on doing. it's such a horrible thing. [ Reply | More
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General Topics 06.02.08, 08:04 PM Flag
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How did she find out? Amnio? Yeah, that woudl be very hard. No real choice though. Odds are, it won't even make it to term anyways. What did her ob say? [ Reply | More
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General Topics 06.02.08, 08:07 PM Flag
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i don't know what her doctor is telling her. i'm not sure if it was an amnio. i think they saw something odd on the the ultrasound and then did an amnio. but again, i'm not really sure. i'm hearing everything through her mother (and some through my mother that got it through her mother) so most of it is pretty vague. [ Reply | More
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General Topics 06.02.08, 08:10 PM Flag
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hopefully the child will just die in utero. i think an abortion that late term will be grueling. [ Reply | More
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General Topics 06.02.08, 08:11 PM Flag
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what a nightmare. [ Reply | More
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General Topics 06.02.08, 08:16 PM Flag
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oh dear, so sorry. trisomy 18 (I think it's called Edwards Syndrome) has a more severe retardation associated with it than trisomy21 (Downs). Many fetuses don't survive to birth. So sorry for your friend. [ Reply | More
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General Topics 06.02.08, 08:05 PM Flag
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i shouldn't do or say or send anything, right? [ Reply | More
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General Topics 06.02.08, 08:08 PM Flag
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I guess I'd wait to see if she's going to terminate or what. But IMHO you can always send a card that just says "thinking of you" . [ Reply | More
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General Topics 06.02.08, 08:10 PM Flag
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tell her you're there for her and ask if you can do anything. Keep in touch and make sure she has someone to talk to. But I wouldn't send anything until you know what's going to happen. You wouldn't want to be sending condolences when there is still a live baby involved. [ Reply | More
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General Topics 06.02.08, 08:12 PM Flag
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ita [ Reply | More
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General Topics 06.02.08, 08:12 PM Flag
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thank you (and the OR above you). i guess i'll call or send a card. [ Reply | More
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General Topics 06.02.08, 08:16 PM Flag
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does anyone know of someone terminating a baby with trisomy 18 and then going on to having a healthy baby? [ Reply | More
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General Topics 06.02.08, 08:06 PM Flag
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or from above. Of course people do -- this is a chromosomal defect, not og genetic origin and has nothing to do with future pregnancy,. It's a random even like most miscarriages.. [ Reply | More
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General Topics 06.02.08, 08:09 PM Flag
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yes, my friend has two beautiful healthy dds after losing her son to trisomy 18. [ Reply | More
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General Topics 06.02.08, 08:11 PM Flag
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