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07.21.08, 17:09 PM Expecting
41 replies
Has anyone elected to have the CVS genetic testing and experienced a miscarriage as a result? I am planning to have CVS, live in NYC, have experienced a mc before. I know miscarriage rates are lower now and based on practitioner experience. Curious is anyone here has actually experienced CV-induced mc? [ Reply | Watch | Flag ]
Expecting 07.21.08, 05:09 PM Flag
 

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I think it is hard to tell what a miscarriage is from that early. If you are having a CVS chances are that maybe you are older or at higher risk in pregnancy anyway and some of those Genetic traits end up in miscarriage anyway. I had the CVS in NYC, Dr. Saltzman, he is very good, no garuntees of course. I know of one person who attributes the CVS to miscarriage and she was having twins. There are tons of discussions on it and I read a lot of them to make my decision. Good Luck, it was scary for me too. [ Reply | More
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General Topics 07.21.08, 05:16 PM Flag
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np: i'm in that practice as well (see rebarber). after i had a miscarriage, he highly recommended amnios for me instead of the cvs, due to miscarriage risk. and their practice does a ton of cvs's. btw, i also asked him and bender what they would recommend for their own wives, and they said amnios, hands down. [ Reply | More
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General Topics 07.21.08, 05:18 PM Flag
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Wow, that's something. Good information. I guess it depends on your risk and what you would do with the information. [ Reply | More
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General Topics 07.21.08, 05:22 PM Flag
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I know someone who had am miscarriage after her amnio, not attributable to any defects either. It can happen with any invasive test. [ Reply | More
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General Topics 07.22.08, 08:13 AM Flag
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I LOVE that practice. Had both my kids with them. Every doctor there is great. [ Reply | More
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General Topics 07.24.08, 06:07 AM Flag
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they are great! [ Reply | More
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General Topics 02.13.09, 12:45 PM Flag
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General Topics 07.21.08, 05:20 PM Flag
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The testing that they do on the fetus is pretty limited. It rules out a chromosome abnormality, which accounts for about 50% of 1st trimester losses, but it can't rule out everything. [ Reply | More
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General Topics 07.23.08, 08:08 PM Flag
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op: has anyone has a CVS with Ilan Timor at NYU? I have an appt. scheduled with him. Thanks. [ Reply | More
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General Topics 07.21.08, 05:38 PM Flag
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Hi, so has anyone here actually miscarried following a CVS? Thank you in advance. [ Reply | More
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General Topics 07.23.08, 04:41 PM Flag
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np - I actually never heard of him. I did mine with Wapner at Columbia and he was great. Many others use Evans or Stone/Edelman. GL. I found the procedure quite easy [ Reply | More
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General Topics 07.23.08, 07:39 PM Flag
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I had a horrible experience with him, not related to a CVS. He has zero bedside manner. [ Reply | More
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General Topics 07.23.08, 07:45 PM Flag
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op: Timor or Wapner? I also made an appt. with Wapner at Columbia. He is one of the people who developed the technique so I am hoping I'm in good hands with him. [ Reply | More
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General Topics 07.24.08, 04:31 AM Flag
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Go with Wapner - you will be in great hands. His asst is great too. I think that lady meant Timor [ Reply | More
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General Topics 07.24.08, 06:02 AM Flag
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General Topics 07.24.08, 06:02 AM Flag
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thank you! this is reassuring. [ Reply | More
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General Topics 07.24.08, 06:13 AM Flag
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Dr. Timor is very good. Not the warmest Doctor, but very good at what he does...which is what counts for CVS. [ Reply | More
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General Topics 08.07.08, 11:42 AM Flag
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i was in a support group with a woman who had a miscarriage as a result from leaking fluid after an amnio. it was pretty horrible for her. [ Reply | More
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General Topics 07.23.08, 08:12 PM Flag
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Risk of miscarriage following CVS is probably 1:300 or so in experienced hands. If you are unsure-do the nuchal/1st trimester screen. If the risk is high after that test, do the CVS. if the risk is low, then you may feel a little better about waiting until 15 weeks to get the amnio done. What is the reason that you are getting the CVS? Age? or is there somethig else? [ Reply | More
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General Topics 07.23.08, 08:17 PM Flag
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op: the nucheal/triple screen is only 85-90% effective, meaning you're eft with a 10-15% of a false negative. I had a friend who received 1/10,000 chances from her screen last fall and then the baby had turner's syndrome. Another friend who experienced two chromosomal abnormalities. The risk of CVS or Amnio (which appear to be about same now, in experienced hands) is more acceptable to me than the risk of a false negative on the screenings. I have another friend who had twins, screens all came back fine and then in the delivery room, one of her sons has down's. As my ob said, I've seen a cluster. Also, every doc I can find said they would do diagnostic vs. screening if it was themself or their wife. I'm in early 30s. [ Reply | More
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General Topics 07.24.08, 04:35 AM Flag
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what is turner's syndrome? [ Reply | More
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General Topics 07.24.08, 06:13 AM Flag
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It's only in girls and presents when the child has only one X chromosome instead of 2 (or 1 fragile one I think). It's a sex linked disorder and results in no reproductive functioning for the child and the kids are typically very small, if they live. That new fiction book "The Condition" is about a family with a turner's syndrome child. [ Reply | More
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General Topics 07.24.08, 06:16 AM Flag
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What is the lifespan? This sounds awful. I am so sorry for your friend. [ Reply | More
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General Topics 07.24.08, 06:19 AM Flag
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I don't know the lifespan. I should have clarified, after she did the screening, she had a spontaneous miscarriage at 14 weeks and they tested the remains, which is how the baby was diagnosed. Very sad but my friend was also distressed the screening told her only a 1/10,000 chance of chromosomal problems. Wow, I just read on wikipedia that 98% of cases of turner's end in miscarriage and that 10% of all miscarriages are accounted for by Turner's. So it's common, and again, surprising that the screening wouldn't have caught this. [ Reply | More
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General Topics 07.24.08, 06:23 AM Flag
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screening looks for the risk for Down syndrome and Trisomy 18 (three copies of chromosome 18). It does not check for all chromosome abnormalities. People that are born with Turners have normal lifespan, normal intelligence (usually, although there may be an increased risk for learning disabilities), but are born without functioning ovaries. They are infertile, and need estrogen supplementation to develop secondary sexual characteristics [ Reply | More
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General Topics 07.24.08, 09:41 PM Flag
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I had an mc at 3 mo and it was found that the reason was Turners syndrom; kids who are born w it usually have heart problems and learning disabilities and are born infertile. I was devistated but after learning about Turners I thank g-d I had a miscarriage. It sounds crazy but I am now 7 weeks and just preying for a healthy baby! [ Reply | More
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General Topics 09.14.08, 04:20 PM Flag
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I was not suggesting using the nuchal as an alternative to prenatal diagnosis. I was suggesting using the nuchal to help decide between early and later diagnosis. If the nuchal was wildly abnormal, then I wouldn't want to wait until 15 weeks for an amnio. If it was normal, then I could wait the extra month for testing [ Reply | More
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General Topics 07.24.08, 09:38 PM Flag
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Why do you suggest this if my concern is the low effectiveness rates of the screening (85-90%) and you're suggesting getting an amnio anyway? Why not just do CVS? Especially when, as discussed, risk rates are comparable. I feel like I'm missing what you're saying and am trying to understand... [ Reply | More
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General Topics 07.27.08, 03:52 PM Flag
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CVS 1:100, amnio 1:400; 10% false positive (not negative) for nuchal/triple screen...that's why it's a screening. Could you imagine if 10% of the people who did nuchal screen (which almost everyone does) tested negative and really had abnormalities...that would be an unfathomable amount of babies. Bad info! [ Reply | More
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General Topics 08.07.08, 11:48 AM Flag
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No, you are wrong also. The screening has a detection rate of 85-90%. Meaning in 10-15% of cases, there is a false negative - the screeing indicates there is no problem with the fetus but in fact there is. Your "could you imagine" scenario is the way it is! Look it p or ask your OB/Gyn...I just talked to mine about it, as well as the doctor who did the CVS... [ Reply | More
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General Topics 08.12.08, 11:02 AM Flag
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you have the it the wrong way...it's 10% false positive...meaning 10% of the time a patient is told there is a problem and further testing reveals none: that's why it's called a screening. Miscarraige for CVS is 1:100, amnio 1:400. [ Reply | More
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General Topics 08.07.08, 11:40 AM Flag
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np: an experience practitioner has much lower pg loss rates than those (for both amnio AND CVS) - althouh I believe that the loss rate for CVS is still somewhat higher. it is possible however that the higher loss rate is more attributable to the fact that it is 1st tri (when risk of loss is greater anyway). [ Reply | More
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General Topics 08.07.08, 11:49 AM Flag
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agree. you have to speak with the dr about his/her stats and the hospitals. I had one at cornell and felt totally confident about dr's ability and experience. [ Reply | More
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General Topics 08.07.08, 12:30 PM Flag
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No, You are incorrect. The screening has only a 85-90% detection rate. Meaning in 10-15% of cases, people are told the baby is fine when it is not. [ Reply | More
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General Topics 08.12.08, 11:00 AM Flag
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Yes, I have just experienced a miscarriage after a CVS. I have had 3 miscarriages before this one, all previous miscarriages were before week 8. The CVS was done 3-5 days before the fetus died, at week 11. The US was normal, with normal heart rate before the procedure - and there were no chromosomal abnormalities. According to some older studies, there is a slightly increased risk of miscarriage after CVS and amniocentesis for women with recurrent miscarriages. Unfortunately, I was not aware of the increased risk before electing to have the procedure was done. [ Reply | More
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General Topics 08.12.08, 10:53 AM Flag
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OP: I am so sorry for your losses. I was involved in a research study on recurrent miscarriage and I know how devastating multiple losses, without explanations, can be. I am so sorry. I had my CVS last Thursday. So far I am feeling well, no spotting or cramping. I am seeing my ob on Monday and am anxiously awaiting that visit. Good luck to you. [ Reply | More
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General Topics 08.13.08, 06:52 AM Flag
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You should definitely go see Dr. Mark Evans. He is the best in the country and I believe was one of the pioneers of this procedure. People come in to NYC from all over to see him. [ Reply | More
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General Topics 08.13.08, 07:44 AM Flag
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OP - thanks, I did the procedure with Ronald Wapner last week. He too was involved in the development of the procedure years ago. [ Reply | More
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General Topics 08.13.08, 08:09 AM Flag
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Try Dr. Lynn Simpson at Columbia for your CVS. She's great. [ Reply | More
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General Topics 01.18.09, 08:14 PM Flag
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Yes m/c because of CVS. It is riskier when you look at the numbers. No doubt compared to amnio. Dr said it was prob due to intrusive nature of CVS at that early stage. There were no genetic problems. [ Reply | More
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General Topics 01.19.09, 03:53 AM Flag
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wow. That is tragic. I am so sorry. [ Reply | More
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General Topics 02.13.09, 01:36 PM Flag
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