< Return to Talk
06.17.08, 10:10 AM Toddler
23 replies
Our 19 mo ds was diagnosed with PDD, Apraxia, & Motor dyspraxia yesterday. Finally a name for what is going on. anyone have any advice or suggestions? I feel so overwhelmed with all the info. we are changing his diet, adding vitamins, etc. in addition to major intensive therapy. [ Reply | Watch | Flag ]
Toddler 06.17.08, 10:10 AM Flag
 

Dear UrbanBaby community,

Thank you so much for being a valued member of the UrbanBaby community. We wanted to inform you that we are shutting down the site on July 6th. We are grateful for your participation and support that has helped make UrbanBaby such an important resource to parents for many years.

If you have any questions or concerns, you can email us at urbanbaby-support@cbsinteractive.com.

Thanks so much,

UrbanBaby Support

»
Are you hooked into EI yet? What were you seeing that made you suspect a problem? [ Reply | More
]
General Topics 06.17.08, 10:13 AM Flag
»
We are starting EI hopefully by next week. They are asking for 15-20 hours of ABA therapy, speech therapy every day & 3 days a week of occupational therapy. He can't communicate at all- athough very social & happy. No pointing, no words, no idea who mama or dada is, no idea of body parts, etc. [ Reply | More
]
General Topics 06.17.08, 10:14 AM Flag
»
Can you tell me more about your son? My son is 15 months recieves speech, ot, pt but neurologist is reluctant to diagnose anything saying he is too young and may outgrow his delays. He also has feeding problems. When did you begin to notice areas of concern in your son? [ Reply | More
]
General Topics 07.06.08, 09:27 AM Flag
»
Our DS is mildly apraxic and has some motor issues similar to dyspraxia. I'm glad you have a name and a plan of attack for your DS - it makes such a difference. I'm sure you are starting PROMPT speech therapy, a lifesaver for my DS. But I did want you to know that most experts think that apraxia and dyspraxia cannot be reliably diagnosed until age 3. We did therapy assuming DS did, because we didn't want a delay in helping him. [ Reply | More
]
General Topics 06.17.08, 10:13 AM Flag
»
np - isn't dyspraxia no speech? Wouldn't this be evident long before 3? [ Reply | More
]
General Topics 06.17.08, 10:15 AM Flag
»
^^ sorry I meant apraxia = no speech [ Reply | More
]
General Topics 06.17.08, 10:15 AM Flag
»
It's not necessarily no speech. But a type of disconnect between brain and mouth so forming sounds is very difficult. [ Reply | More
]
General Topics 06.17.08, 10:16 AM Flag
»
ok, my 2 yo has apraxia and is seen by EI Speech Therapist. I have never heard of PROMPT - is it more effective than traditional therapies? [ Reply | More
]
General Topics 06.17.08, 10:21 AM Flag
»
We were told it is the gold standard for apraxia. You can get more info by googling, and I think the apraxia website has a section about it. [ Reply | More
]
General Topics 06.17.08, 10:22 AM Flag
»
interesting. our developmental ped said he had to have PROMPT therapy, although our speech therapist (private- not through EI) is not trained in it. I may have to switch. [ Reply | More
]
General Topics 06.17.08, 10:15 AM Flag
»
There are some PROMPT books you can buy so you can train yourself a bit in the approach. Even though DS is doing amazing now at 6yo, I tend to use the multi-sensory approach with him still for homework, etc. [ Reply | More
]
General Topics 06.17.08, 10:18 AM Flag
»
Our son was diagnosed w/apraxia and SID, and has poor motor planning, delayed gross and fine motor delays. Our developmental ped (Agin) suggested fish oil supplements and I saw an immediate difference in both speech and behavior. We used nordic naturals Complete Omega 3.6.9. From talking to other moms, people seem to see either an immediate improvement or no improvement though everyone pretty much agrees there's no downside in trying it. Of course, our ds also gets tons of therapy since he was 18 mos. Now at 4, he is doing great. [ Reply | More
]
General Topics 06.17.08, 10:21 AM Flag
»
we saw Dr. Agin for the 1st time yesterday. very impressed. I tried to give my son the fish oil today & he wouldn't take it. any suggestions? also, did you take out all dairy, wheat, gluten, etc? [ Reply | More
]
General Topics 06.17.08, 10:22 AM Flag
»
no, we didn't change diet. He wouldn't take it directly so we put 1 tsp in his apple juice. Of course then he got addicted to apple juice but it was still worth it. [ Reply | More
]
General Topics 06.17.08, 10:24 AM Flag
»
np: Any luck with the flavored liquid or chews? Was thinking of trying the strawberry ones. [ Reply | More
]
General Topics 06.17.08, 10:26 AM Flag
»
I never tried the chews b/c he had some poor oral motor skills that I was afraid he couldn't chew them. The nordic naturals is lemon flavored [ Reply | More
]
General Topics 06.17.08, 10:30 AM Flag
»
Thx [ Reply | More
]
General Topics 06.17.08, 10:31 AM Flag
»
thanks- very helpful. is your son now in a regular school? [ Reply | More
]
General Topics 06.17.08, 10:26 AM Flag
»
yes, he's been in mainstream preschool since 2 1/2 with limited SEIT hours (6 hrs/week). I feel like he'll always require more attention and work but no one else can really tell. He's got very scattered skills--- excellent memory, very advanced w/letters and numbers/time, etc. so it's not all bad [ Reply | More
]
General Topics 06.17.08, 10:28 AM Flag
»
that is awesome to hear. thank you for your help. [ Reply | More
]
General Topics 06.17.08, 10:30 AM Flag
»
good luck to you. It's really amazing how much early therapy helps. I'm so happy for you that you got the diagnosis so early. [ Reply | More
]
General Topics 06.17.08, 10:32 AM Flag
»
Hi OP, so glad to see you got good support here - I just wanted to let you know that the majority of the SN moms have moved on to... you know where...and if you post there we will give you tons of support and info. You've done such a great thing for your ds and the early therapy will make a huge difference. [ Reply | More
]
General Topics 06.17.08, 02:20 PM Flag
»
where is a good place to talk with others about children with apraxia. We have 3yr old with apraxia and low tone and also saw Agin and on fish oil supplements. [ Reply | More
]
General Topics 02.04.12, 06:14 PM Flag
Refresh » New Post »
Select Category
close [X]

close [X]

Select a Category (only 1)

category
Stages
Regions